On March 26th, Thursday, is Purple Day. This is a day that is devoted to increasing the awareness of Epilepsy across the globe!
As many of you out there already know, I have Epilepsy and suffer tonic clonic (gran mal) seizures. You can learn more about these seizures through Wikipedia or through the Epilepsy Website. With the care of my doctors, we are trying to establish a good medication regime so I don't suffer as many as I have been in the last little while. I believe we are making some good steps forward even though my last episode may have seemed a setback but in reality, it was a learning experience for all involved. I may be battered and fatigued but lessons were learned...
"When I wake up from my seizures, and feel as if every muscle is torn from my bones, there is that fine line of disappointment when you don't know if you really are happy to see the light of Emergency Room or if you would rather be gazing into the warm glow of Heaven"
-Michele J-
Epilepsy and seizure disorders are often misunderstood and even though it can be frightening to an onlooker, it really does not have to be!
I have people often ask me "What is Epilepsy?" "What should I do if I see someone having a seizure?" "Should I put a spoon in their mouth so they don't bite their tongue?" "Is Epilepsy contagious?"
These are all acceptable questions and that's why we have Purple Day. So that this can help with some of these questions and to help those become aware of Epilepsy out there.
I cannot stress how many friendships I have lost and still continue to lose because they "are afraid I will have a seizure when I'm around them."
So for this day, March 26, please wear something PURPLE to show your support for Epilepsy Day around the World.
I thank all those special blogger friends that have been supporting this cause by displaying the badge and/or posting.
Thank YOU! ♥♥
A few photos to mark the occasion...
Purple/Pink Sunrise
Tuesday, March 24, 2009
Purple Day- March 26- Thursday!
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Michele
55 Mountain Climbers:
You are a beautiful brave woman and I am honored to know you. I will definitely wear purple and tell everyone I know WHY I am wearing purple!
I am glad you are recovering my dear! You and Marcell remain in my prayers, my sweet friend.
Not only will I wear purple, but I plan on doing a special post on my blog!
The photos are worthy of the occasion - they should be worn by all.
Unbelievable photos of beauty - including you - the picture of a warrior in battle.
You have an amazing gift for photography. Thanks for sharing it with us.
I have a friend with epilepsy and can't imagine how anyone would leave a friendship over such a thing. I hope I AM around her when she has one so I can HELP! My cousin had a grand mal seizure in 5th grade and was in a coma for 3 days. But he outgrew all the seizures at puberty. So sorry you have to struggle with this and I will be praying they find the right meds/treatment to stop these.
God bless you and (((hugs))) from across the miles.
I've just decided to do a purple flower post for this thursday as well. What a grand idea you have here!
go here: http://www.flickr.com/photos/annbb/sets/72157605444180870/ for a sneak peak!
beautiful pictures,
my purple will be on!
hope your recovery is speedy
My good thought and prayers go out to you. I can't imagine loosing a friend over having something wrong. I could not do that to some one I cared about.
Lots of Love and Hugs.
As always: Beautiful pictures, Michele!
You knows all what is worth to know about Epilepsy! You are so brave!
I am glad to be your blogfriend.
Thank you for your kind comments to me.
Fortunately you have many friends who pray for you.
We are thinking of you.
God bless!
You are so special, Michele. I'm so glad that you are willing to share your story so that others become aware. I will wear purple proudly on Thursday ---and will continue to pray for you each and every single day.
Hugs,
Betsy
P.S. Gorgeous pictures.
You know I'm always praying your doctors can come up with a successful treatment plan. Know that so many support you and pray for you. OF COURSE I'll wear purple! Be well Michele.
Michelle,I can only keep on praying that in the near future your life will be as bright and cheerful as those flower pictures.
Blessings,Ruth
Congratulations Michele
You are a true warrior!
Michele - I admire your bravery, candor and willingness to share your experiences. i will definitely wear purple and post something on my blog on this special day.
Those flowers are just beautiful. I will be wearing purple Thursday. :-)
Wonderful photos to remind us of the epilepsy day. I will have to find some purple ribbon to wear tomorrow!
Love and prayers for your recovery ...good to see you back blogging already! Amazing!
Take care and remember that many of us keep you in our hearts and prayers.
Unbelieveably I don't own any purple clothing or I would wear it but my Special Needs clients own purple and I will dress them in purple to mark the date. My brother also has Epilepsy and has suffered from it as well. I hope you feel better soon and teh medication routine they work for you helps. Take care.
So sorry you're going through this, Michele. I'll be thinking of you on Thursday while wearing purple.
Sending best purple thoughts your way.
Michele, I'm so glad now you feel well and you're blogging again. You are always in my prayers, my friend.
{{{Hugs}}}
Michele: I will post on your plight later on today and a remerbrance of this day. You are a strong person.
I am hoping that you are feeling bettter soon. I was sorry to hear you were in the hospital....
The photos are just amazing. You are so talented.
take care,
suz
I came over from The Fishing Guy's blog about Epilepsy, a tribute to you. He is a special friend to us all.
Just wanted to let you know you are thought about during this recovery time. And hoping it will be a quick one and that they will be able to find the medecine that will help you live a more pleasant life with this terrible disease.
Thank you for telling us about this day. I will wear purple tomorrow. Beautiful post and photographs from a beautiful and brave woman.
I'll be in purple, my friend. And I've asked all of my readers to do so as well.
Love your photos today.
*hugs*
I most certainly will wear purple. I had no idea about this until I read your blog. Thanks for sharing!
You really look like you have had a tough time of it on the photo. Such a differense to the sweet and smily picture up top. To have lost friends because of your illness is a really cruel fate in my book. I cannot say how bad I feel because of that.
Your words under your picture made me so sad my friend. So very sad. I selfishly hope that you shall recover with the right medication to an acceptable level so that we all can enjoy your amazing photography in times to come. Of course I mostly wish that for your own sake and your husband's too.
I unfortunately own nothing purple to wear but I will see if I can find any purple picture and I will then post that on my blog tomorrow with the words telling it is for epilepsy awareness day.
With blessings and hugs
Tarolino
Hi Michele, so sorry to hear you are unwell. You are missed.{{{hugs}}}
My bowls waistcoat is purple and I will wear it to support your awareness day.
Mean while I hope that things are going good in hospital and that you will soon be back home and feeling better.
You are an inspiration! I'll definitely be wearing purple and sending good thoughts your way.
Beautiful pictures to show us something we don't usually think about. thanks.
I have tears in my eyes; I can’t believe friends would turn their back on you just because you have Epilepsy; you are so much more than an illness and have a lot of life to live.
The photos of the purple sky and flowers are very well done! I will wear purple tomorrow in honor of you and others.
This is a very nice purple serie ! I'll post purple on my blog as well...
Oh, it hurts me to see you like this, Michele. I'll be looking through my closet for SOMETHING purple. Take care, mon ami.
I've linked your page to mine for tomorrow.
Hello Michelle. I have drifted over from Tom's blog just to add my good wishes. Keep getting better. I admire your strength in dealing with your illness and life in general.
Bless you Michele! Thinking of you especially today. Hugs! :-)
Wed. Night
Michele, I just wanted you to know that I am thinking about you and praying for you. We are going to the Smokies tomorrow through Sunday to do some waterfalling and hiking..
Just wanted you to know that I'm thinking about you. I hope that by Sunday, you will be feeling LOTS BETTER.
Hugs and God Bless You and Yours,
Betsy--who is wearing purple tomorrow in honor of her special friend, Michele
The photos are really beautiful Michele. I hope you are getting better each day. I will wear purple tomorrow. Hugs to you.
Mchele, you are a wonderful woman. I fully know the feeling of not wanting to come back. After my last heart op I was quite resentful to have been sent back. Having that heightened sense of awareness I brought back with me I did not want to lose it. It faded again in about a year, but I still remember the sense of wonderful connectedness to other souls.
It was Torelino who brought my attention to what you are going through. I have visited your blog from time to time - but didn't realize you have epilepsy.
I cannot believe what I am reading, when you say you have lost friends beacause of your illness. That is cruel and in my book not friends. I understand you are going through a tough time now - and can only send you my best wishes for your recovery.
I don't have anything purple to wear - but I have made a little post on my blog (linking to you) with a purple flower to you!
All the best wishes from Norway!
I have purple on even as we speak! Hope all is better for you Michelle.....and they are able to figure out a med routine that will work for you......
I have been from Valkyriens blog and found out about Purple Day. Thank you for spreading awareness about epilepsy. I think you are a very brave woman! I have linked to you to support this event. I wish I had known earlier about it. Best wishes :).
I found you thru Shelley and wanted to say how much I admire you and I am thrilled to see your lovely photos. Thank you for bringing an awareness of epilepsy to all of us. I have on my purple.
Visiting via Carver's blog. An amazing post, I didn't know about this day and I am glad I do now.
Enjoyed your beautiful pictures.
Michele....I am in awe of your photography, it is absolutely beautiful......you have a talent....
May they soon find the combination of medication to help you with your epilepsy....
Thinking of you........
Happy to help
Michele - you are an inspiration. Well done for highlighting this as you are doing but also whilst you are suffering so much. You look so tired and beat up in that photo, but I am glad the docs are working WITH you.
Your photography is special, as are you. Take care. (((hugs)))
I just read this post and wasn't aware of the PURPLE day.. . but guess what?? I was wearing my favorite purple sweatshirt!! So I was dressed appropriately. :)
I hope you did ok today.......
I've posted purple flowers on my header for you.
You're a strong soul Michele, keep your spirit and your beautiful photograph flowing!
I hold you in my heart, living with this illness must be so challenging! You are incredibly gifted with your photography, you have captured the spirit of these amazing flowers~
I didn't know about the Epylepsy Day, but (nothing happens by chance) I was wearing a purple t-shirt all day yesterday, Michele. I like to think it was my heart that listened to your voice.
Only now I knew that you've benn in hospital. I'll always keep sending you positive, warm, loving vibes to you and your sweet hubby.
Kisses from Nydia. I don't often comment, but always have you in mind & heart.
Michele,
I'm so sorry I missed this! Thank you for sharing your heart with us. You are an inspiration!
xoxo,
Mary
I'm going to make sure I wear purple on Purple Day every year from now on. Awesome photos Michele, yes even the one of you in your hospital gown. You are brave and beautiful!
This collection of photos are spectacular. You have done so much to raise everyone's awareness about epilepsy. You are amazing!
I'm sorry you continue to have problems with your seizures but your blog does a good job helping to educate people about epilepsy. I'm sorry the problem has cost you some of your friends. Too bad they couldn't see beyond it.
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